New Diagnosis, Now What?

  1. Take Time to Process
      • Allow yourself and your family time to absorb the diagnosis.
      • Remember: this diagnosis does not define your child — it helps you understand how to best support them.
  2. Schedule a Follow-Up with the Diagnosing Provider
      • Review the evaluation results in detail.
      • Ask for clarification on your child’s strengths, challenges, and recommended services.
      • Request copies of all reports for your records.
      • Make sure the diagnosing physician fills out an FA11F Form
  3. Explore Therapy Options
      • Applied Behavior Analysis (ABA): Evidence-based therapy focusing on behavior, communication, and daily living skills.
      • Speech Therapy: Supports communication, articulation, and social language skills.
      • Occupational Therapy (OT): Helps with sensory processing, fine motor skills, and daily routines.
      • Physical Therapy (PT): Addresses gross motor coordination and balance if needed.
  4. Check Your Insurance Coverage
      • Contact your insurance company to confirm what autism-related services are covered (ABA, OT, Speech, etc.).
      • Ask if pre-authorization is required.
      • Keep records of all correspondence.
  5. Build a Care Team
      • Identify key professionals involved in your child’s care: pediatrician, BCBA, therapists, teachers, case managers, etc.
      • Ensure everyone communicates regularly about progress and goals.
  6. Learn About Autism and Advocacy
      • Educate yourself through reputable sources (e.g., Autism Speaks, CDC, Autism Society).
      • Join parent support groups to connect with other families navigating similar experiences via social media and other outlets.
      • Learn about your child’s rights under IDEA and ADA laws.
  7. Create a Family Support Plan
      • Balance therapy schedules with family time and rest.
      • Consider respite care or counseling if needed for family well-being.
      • Celebrate your child’s progress, big and small.
  8. Look Ahead with Hope
          • Set long-term goals that align with your child’s strengths and interests.
          • Remember: with the right supports, children with autism can thrive and reach their fullest potential!